The evolution and everyday practice of collective patient involvement in Europe an examination of policy processes, motivations, and implementations in four countries /
SamenvattingZusammenfassungSammanfattningAcknowledgments -- or: The Jigsaw PuzzleContents1. Introduction1.1. The Underlying Puzzle of the Book1.1.1. Health system types1.1.2. Changed roles in healthcare and involvement1.2. Aim and Question of the Book1.3. Structure of the Book2. Patient Involvement...
| Main Author: | Haarmann, Alexander, |
|---|---|
| Other Authors: | SpringerLink (Online service) |
| Format: | eBook |
| Language: | English |
| Published: |
Cham, Switzerland :
Springer Nature,
2017.
|
| Physical Description: |
1 online resource. |
| Subjects: |
| Summary: |
SamenvattingZusammenfassungSammanfattningAcknowledgments -- or: The Jigsaw PuzzleContents1. Introduction1.1. The Underlying Puzzle of the Book1.1.1. Health system types1.1.2. Changed roles in healthcare and involvement1.2. Aim and Question of the Book1.3. Structure of the Book2. Patient Involvement -- of Whom, What for, and in What Way?2.1. Forms of Involvement and Legitimacy2.2. Equivalents to Patient Involvement3. A Theoretical Framework for the Study3.1. Institutionalism3.1.1. Historical institutionalism3.1.2. The basic idea about actor-centred institutionalism3.1.3. Strategic actors3.2. On Agendas, Ideas, and Paradigms3.2.1. Ideas3.2.2. Policy Paradigms3.3. Conclusions4. Methodology and Study Design4.1. To Begin With: What Methodology Suits Question and Theory?4.2. Case Study Design4.2.1. Choice of countries and "plausibility probing"4.2.2. Pitfalls on the way -- Or: What to learn from previous case studies4.3. Historical Processes4.4. Methods, Sources, and Analysis4.4.1. Methods and Sources4.4.2. Analysis5. The Netherlands5.1. Introduction5.1.1. The Dutch welfare state -- A unique case5.1.2. Care and healthcare provision -- An overview5.1.3. A long history of involvement5.1.4. The political system, parties, and trade unions5.2. Sources5.3. Pillarisation and Depillarisation as Societal Preconditions for Involvement5.4. Developments in the Health Insurance -- A History of Attempted Cost-containment5.4.1. Growth control by legislative regulation5.4.2. From sickness funds to private health insurances5.4.3. Patient rights5.4.4. Emergence and origins of the patient movement5.4.5. Patient organisations and involvement on the rise5.4.6. The rise of popularity of involvement in the political sphere5.5. The Legislative Process to Collective Patient Involvement5.5.1. WDFI -- Bill on the Democratic functioning of subsidised healthcare institutions (1984)5.5.2. WDFZ -- Bill on the Democratic functioning of (health)care institutions (1988)5.5.3. WMCZ -- Client participation act5.5.3.1. The legislation process of the WMCZ (1992-1994)5.5.3.2. The character of the WMCZ5.5.3.3. The underlying idea is subject to change5.5.3.4. Further developments5.5.4. Summary5.6. Valuation of Implementation5.6.1. Change over time -- An overview5.6.2. One law to unite them all5.6.3. The way of working together5.6.3.1. Filling the legal framework with content5.6.3.2. Management -- or: The clash of two lifeworlds5.6.3.3. Influence, competences, and professionalisation of client councils5.6.4. Client councils as a countervailing power?5.6.5. Problems5.6.5.1. Representativity and legitimacy5.6.5.2. Sticking point hospitals5.6.5.3. The relation to patient platforms and related difficulties5.6.6. Conclusion6. England6.1. Introduction6.1.1. The NHS6.1.2. The political system, parties, and interest groups6.1.3. Decentralisation6.2. Sources6.3. Patient and Public Involvement Within the NHS6.3.1. Equivalents to patient involvement within the NHS6.3.2. Formal means of public involvement -- A continuous story of discontinuity6.3.2.1. The outset of patient involvement -- Community health councils6.3.2.2. Lack of accountability and legitimacy6.3.2.3. From unwanted interference to valued input6.3.2.4. On ill-fitting categories and conceptual difficulties of the existing participatory structure6.3.3. Summary -- 'Reorganisation as an obsession'6.4. NHS Foundation Trusts6.4.1. The NHS trust as precursor -- 'Foundation trust light'6.4.2. Foundation trusts -- Concept, structure, and supervision6.4.3. The legislation process -- Legislation on the fast-track6.4.3.1. Quality of care and performance -- The main target6.4.3.2. Decentralisation and independence -- The tool6.4.3.3. Democracy and accountability -- A nice add-on6.4.4. The legislation process -- Cross-party concerns6.4.4.1. Party politics and strategic reasoning6.4.4.2. Reception outside Parliament6.5. Valuation of Involvement in Foundation Trusts6.5.1. Monitor -- Assessments and reform6.5.2. Implementation at the foundation trusts6.5.2.1. The interplay between monitor and foundation trusts6.5.2.2. Membership numbers, governors, and representativity6.5.2.3. Governors and their role in foundation trusts6.5.2.4. Interplay between governors and boards and governors' involvement6.6. Summary: Involvement -- A Long Grown Idea Pursued7. Germanyntroduction7.1.1. The healthcare system7.1.2. The political system, parties, and trade unions7.2. Sources7.3. Involvement in the German Healthcare System7.3.1. Self-governance7.3.2. Joint federal committee -- The "little legislator"7.3.3. Other equivalents to patient involvement7.3.4. Involvement in nursing homes7.3.4.1. Hamburg7.3.4.2. Sachsen7.3.4.3. Valuation of involvement in nursing homes7.4. Summary8. Sweden8.1. Introduction8.1.1. The healthcare system -- An overview8.1.2. The political system, parties, and interest groups8.2. Sources8.3. Patient Involvement in the Swedish Healthcare System8.3.1. Equivalents to patient involvement8.3.1.1. Individual patient rights8.3.1.2. The system of ombudsman8.3.1.3. Patient organisations8.3.2. The emergence of collective involvement8.3.3. Involvement via user organisations8.3.3.1. A change in attitude towards involvement8.3.3.2. Historical legacies8.3.3.3. The primacy of democratically elected politicians8.3.3.4. Zeitgeist, the economy, and a new general of politicians8.3.3.5. Choice -- Different means to the same end8.3.4. Other reasons for a late emergence of patient involvement8.3.4.1. About authoritarianism and independence8.3.4.2. Too busy to ... 8.3.5. Other forms of involvement8.4. Valuation of Patient Involvement by the Interviewees8.4.1. Topics raised and the way of working together8.4.2. Development of patient organisations8.4.3. Representativity and legitimacy8.5. Summary8.6. An Outlook9. Comparison -- Bringing Four Cases Together9.1. Empirical Findings and Commonalities9.1.1. Emerging forms of involvement and commonalities9.1.2. More commonalities -- The market, NPM, and patients as customers9.1.3. Actor relations9.1.4. Historical institutionalism9.1.5. Ideas9.2. On Patients, Users, Consumers, and Customers9.3. Perception -- The Undervalued Factor9.4. Policy Paradigms and Path Breaks -- Fuzzy Assumptions and a Vague Relation9.5. Towards a Revised Model of Policy Processes9.6. Four Countries Revisited9.6.1. The Netherlands9.6.2. England9.6.3. Germany9.6.4. Sweden9.7. Four Countries, Two Types of Involvement, and Beyond9.8. General Implications -- Involvement and Beyond9.9. ConclusionsBibliographyA. Appendix -- Interview GuidelinesA.1. The NetherlandsA.2. EnglandA.3. GermanyA.4. SwedenB. Appendix -- CodesB.1. The NetherlandsB.2. EnglandB.3. GermanyB.4. SwedenC. Appendix -- Additional MaterialC.1. International Names of PlacesC.2. Calculation of Interrater ReliabilityC.4. The NetherlandsC.5. EnglandC.6. GermanyC.7. SwedenList of TablesList of FiguresList of Abbreviations. |
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| Item Description: |
Includes bibliographical references. SamenvattingZusammenfassungSammanfattningAcknowledgments -- or: The Jigsaw PuzzleContents1. Introduction1.1. The Underlying Puzzle of the Book1.1.1. Health system types1.1.2. Changed roles in healthcare and involvement1.2. Aim and Question of the Book1.3. Structure of the Book2. Patient Involvement -- of Whom, What for, and in What Way?2.1. Forms of Involvement and Legitimacy2.2. Equivalents to Patient Involvement3. A Theoretical Framework for the Study3.1. Institutionalism3.1.1. Historical institutionalism3.1.2. The basic idea about actor-centred institutionalism3.1.3. Strategic actors3.2. On Agendas, Ideas, and Paradigms3.2.1. Ideas3.2.2. Policy Paradigms3.3. Conclusions4. Methodology and Study Design4.1. To Begin With: What Methodology Suits Question and Theory?4.2. Case Study Design4.2.1. Choice of countries and "plausibility probing"4.2.2. Pitfalls on the way -- Or: What to learn from previous case studies4.3. Historical Processes4.4. Methods, Sources, and Analysis4.4.1. Methods and Sources4.4.2. Analysis5. The Netherlands5.1. Introduction5.1.1. The Dutch welfare state -- A unique case5.1.2. Care and healthcare provision -- An overview5.1.3. A long history of involvement5.1.4. The political system, parties, and trade unions5.2. Sources5.3. Pillarisation and Depillarisation as Societal Preconditions for Involvement5.4. Developments in the Health Insurance -- A History of Attempted Cost-containment5.4.1. Growth control by legislative regulation5.4.2. From sickness funds to private health insurances5.4.3. Patient rights5.4.4. Emergence and origins of the patient movement5.4.5. Patient organisations and involvement on the rise5.4.6. The rise of popularity of involvement in the political sphere5.5. The Legislative Process to Collective Patient Involvement5.5.1. WDFI -- Bill on the Democratic functioning of subsidised healthcare institutions (1984)5.5.2. WDFZ -- Bill on the Democratic functioning of (health)care institutions (1988)5.5.3. WMCZ -- Client participation act5.5.3.1. The legislation process of the WMCZ (1992-1994)5.5.3.2. The character of the WMCZ5.5.3.3. The underlying idea is subject to change5.5.3.4. Further developments5.5.4. Summary5.6. Valuation of Implementation5.6.1. Change over time -- An overview5.6.2. One law to unite them all5.6.3. The way of working together5.6.3.1. Filling the legal framework with content5.6.3.2. Management -- or: The clash of two lifeworlds5.6.3.3. Influence, competences, and professionalisation of client councils5.6.4. Client councils as a countervailing power?5.6.5. Problems5.6.5.1. Representativity and legitimacy5.6.5.2. Sticking point hospitals5.6.5.3. The relation to patient platforms and related difficulties5.6.6. Conclusion6. England6.1. Introduction6.1.1. The NHS6.1.2. The political system, parties, and interest groups6.1.3. Decentralisation6.2. Sources6.3. Patient and Public Involvement Within the NHS6.3.1. Equivalents to patient involvement within the NHS6.3.2. Formal means of public involvement -- A continuous story of discontinuity6.3.2.1. The outset of patient involvement -- Community health councils6.3.2.2. Lack of accountability and legitimacy6.3.2.3. From unwanted interference to valued input6.3.2.4. On ill-fitting categories and conceptual difficulties of the existing participatory structure6.3.3. Summary -- 'Reorganisation as an obsession'6.4. NHS Foundation Trusts6.4.1. The NHS trust as precursor -- 'Foundation trust light'6.4.2. Foundation trusts -- Concept, structure, and supervision6.4.3. The legislation process -- Legislation on the fast-track6.4.3.1. Quality of care and performance -- The main target6.4.3.2. Decentralisation and independence -- The tool6.4.3.3. Democracy and accountability -- A nice add-on6.4.4. The legislation process -- Cross-party concerns6.4.4.1. Party politics and strategic reasoning6.4.4.2. Reception outside Parliament6.5. Valuation of Involvement in Foundation Trusts6.5.1. Monitor -- Assessments and reform6.5.2. Implementation at the foundation trusts6.5.2.1. The interplay between monitor and foundation trusts6.5.2.2. Membership numbers, governors, and representativity6.5.2.3. Governors and their role in foundation trusts6.5.2.4. Interplay between governors and boards and governors' involvement6.6. Summary: Involvement -- A Long Grown Idea Pursued7. Germanyntroduction7.1.1. The healthcare system7.1.2. The political system, parties, and trade unions7.2. Sources7.3. Involvement in the German Healthcare System7.3.1. Self-governance7.3.2. Joint federal committee -- The "little legislator"7.3.3. Other equivalents to patient involvement7.3.4. Involvement in nursing homes7.3.4.1. Hamburg7.3.4.2. Sachsen7.3.4.3. Valuation of involvement in nursing homes7.4. Summary8. Sweden8.1. Introduction8.1.1. The healthcare system -- An overview8.1.2. The political system, parties, and interest groups8.2. Sources8.3. Patient Involvement in the Swedish Healthcare System8.3.1. Equivalents to patient involvement8.3.1.1. Individual patient rights8.3.1.2. The system of ombudsman8.3.1.3. Patient organisations8.3.2. The emergence of collective involvement8.3.3. Involvement via user organisations8.3.3.1. A change in attitude towards involvement8.3.3.2. Historical legacies8.3.3.3. The primacy of democratically elected politicians8.3.3.4. Zeitgeist, the economy, and a new general of politicians8.3.3.5. Choice -- Different means to the same end8.3.4. Other reasons for a late emergence of patient involvement8.3.4.1. About authoritarianism and independence8.3.4.2. Too busy to ... 8.3.5. Other forms of involvement8.4. Valuation of Patient Involvement by the Interviewees8.4.1. Topics raised and the way of working together8.4.2. Development of patient organisations8.4.3. Representativity and legitimacy8.5. Summary8.6. An Outlook9. Comparison -- Bringing Four Cases Together9.1. Empirical Findings and Commonalities9.1.1. Emerging forms of involvement and commonalities9.1.2. More commonalities -- The market, NPM, and patients as customers9.1.3. Actor relations9.1.4. Historical institutionalism9.1.5. Ideas9.2. On Patients, Users, Consumers, and Customers9.3. Perception -- The Undervalued Factor9.4. Policy Paradigms and Path Breaks -- Fuzzy Assumptions and a Vague Relation9.5. Towards a Revised Model of Policy Processes9.6. Four Countries Revisited9.6.1. The Netherlands9.6.2. England9.6.3. Germany9.6.4. Sweden9.7. Four Countries, Two Types of Involvement, and Beyond9.8. General Implications -- Involvement and Beyond9.9. ConclusionsBibliographyA. Appendix -- Interview GuidelinesA.1. The NetherlandsA.2. EnglandA.3. GermanyA.4. SwedenB. Appendix -- CodesB.1. The NetherlandsB.2. EnglandB.3. GermanyB.4. SwedenC. Appendix -- Additional MaterialC.1. International Names of PlacesC.2. Calculation of Interrater ReliabilityC.4. The NetherlandsC.5. EnglandC.6. GermanyC.7. SwedenList of TablesList of FiguresList of Abbreviations. Introduction.- Patient Involvement -- of Whom, What for, and in What Way? -- A Theoretical Framework for the Study -- Methodology and Study Design.- The Netherlands.- England.- Germany.- Sweden.- Comparison -- Bringing Four Cases Together -- Bibliography. |
| Physical Description: |
1 online resource. |
| Bibliography: |
Includes bibliographical references. |
| ISBN: |
9783319645957 3319645951 |